Australian Motor Neurone Disease Registry

The Australian Motor Neurone Disease Registry is a clinical database that provides a means to facilitate the collection and analysis of MND patient data such as demographics, site of onset, diagnosis data, treatment type, changes in functional capacity, complications related to disease progression and the impact of new treatments and interventions for MND. The goals of the registry are to improve patient care through continuous evaluation of patient management and associated outcomes and to form significant scientific research collaborations with organisations and individuals to further the understanding of MND.

Updates are produced annually and detail the progress of AMNDR and the people involved.

Available now: Latest update from the meeting of the AMNDR steering committee and the research nurses from participating sites held in Sydney on Friday 6 September 2013.

Links that might be helpful to MND patients and their carers. Contact details and links to MND associations that provide support, information, and equipment to people living with MND and their carers within Australia are listed.

Details and facts about the major Australian centres registering patients with MND.

AMNDR Research Collaborations.

Download and read AMNDR publications.