Scientific Collaborations

AMNDR Research Collaborations.

If you are interested in joining please fill the collaborations contact form found on this page.

The aim of this database is to provide a resource for researchers undertaking studies into the causes of motor neuron diseases. The clinical information held in AMNDR relating to clinical phenotypes will provide a powerful adjunct to studies of the genetics of MND/ALS.

The Australian Motor Neurone Disease Registry (AMNDR) and mndRTBv.

The aim of the Victorian Brain Bank Network (VBBN) in collaboration with the Motor Neurone Disease Research Tissue Bank of Victoria (mndRTBv) is to provide Australian and international clinicians and researchers with access to brain and spinal cord tissue and to relevant clinical information that can be used for research into Motor neurone disease (MND).

The donation of post mortem (autopsy) brain and spinal cord tissue for diagnosis and research is of fundamental importance to further our understanding of the causes of MND and to develop more effective diagnostic tools and treatments.

We appreciate this is an important and sensitive decision for the potential donor and family. The following questions and answers are to assist those who are considering registering as a tissue donor.

If you are registered with the AMNDR and decide to register as a brain and spinal cord donor, access to your clinical data from the registry in conjunction with a neuropathology report would further help to aid and facilitate MND research.